Heartland Genetics and Newborn Screening Collaborative 8th Annual Conference
Bismarck, ND
August 24-26, 2011
The Heartland Genetics and Newborn Screening Collaborative annual conference was held at the Best Western Doublewood Inn, August 24-26, 2011 in Bismarck, ND. A big THANK YOU for wonderful hospitality shown from our North Dakota hosts and thanks to everyone who attended this year’s meeting!
Conference Information
- Agenda: Full meeting Agenda
- Evaluation: 34 Evaluation Forms were returned at the conclusion of the conference.
- Attendance: Coming Soon!
Dinner on Friday night: Pictures coming soon!
Barb Schweitzer has graciously offered to host a “Burgers, Brats and Beverages” cookout at her home (just outside of Bismarck) for all Heartland attendees who will be remaining in Bismarck the evening of Friday, August 26th. Transportation to Barb’s home from the Doublewood Inn will be provided, but we request that you RSVP, so appropriate plans can be made.
Speaker Slides
Thursday, August 25
- The State of Public Health Genetics in North Dakota – Terry Dwelle
- The State of Clinical Genetics in North Dakota – Mary Riske
- Fetal Alcohol Specturm Disorder – John Martsolf
- National Coordinating Center Update – Gloria Weissman
- Baby’s First Test.org – Liz Horn
- State Quailty Improvement Projects – Kim Piper
- GSA Update – Chou
- National Quality Improvement Projects – Amy Brower
- National Longterm Follow-up Projects – Amy Brower
- HRCC Report – Klaas Wierenga
- Heartland Evaluation Report – Barb Jackson
- Sanford Hearting Clinic – Quinn Stein and Amy Mroch
- EHDI Guidelines for Pediatric Medical Home Providers
Friday, August 26
- Coordinated Clinics in North Dakota – Tammy Gallup Millner and Carla Houle
- Medical Genetic Services for Native American Populations – Lyle Best
- Adventures in Metabolic Nutrition – Cathy Breedon
- Handouts from Cathy Breedon:
- PKU Camp Results – Ashley Taylor
- I-Library Project – Debra Collins
- Real Time Family Support Through Social Media – Anne Crotty
- A Novel Approach in Telegenetic Services – Shobana Kubendran
Conference Sponsors
Exhibitors:
- PerkinElmer
- BioMarin Pharmaceutical Inc
- Combimatrix Molecular Diagnostics
Travel and Reimbursement
The Heartland Regional Coordinating Center will pay limited travel expenses for Advisory Board members, core work group members and advocates. See Travel Funding List for the names of those included. For those whose travel expenses will be covered, Heartland will pay for travel to the meeting, lodging and meals. Please see the Travel Reimbursement Information document below for complete instructions.
- Travel Funding List
- Travel Reimbursement Information *Updated for 2011*