12TH ANNUAL CONFERENCE
The Heartland Genetics Services Collaborative Twelfth Annual Conference and ancillary meetings were held on October 12 – 14, 2016 at the Capital Hotel in Little Rock, AR. Please see below for the materials presented at the meetings.
CONFERENCE INFORMATION
Evaluation results coming soon!
Attendance:
REIMBURSEMENT
- Please submit the Heartland Reimbursement Form along with the original, itemized receipts to Anayeli Herrera Morales. Please note Heartland will cover travel expenses, lodging, meals en route and not provided at the meeting for those that were on the approved list of attendees or received prior approval by e-mail. If you have any questions regarding your reimbursement status, please contact Anayeli Herrera Morales.
SESSIONS
Wednesday, October 12
- Hispanic Access Advisory Committee (HAAC) Meeting
- Mentoring Networking Lunch
- Advocate Work Group Meeting
- Heartland Advisory Board Meeting
Thursday, October 13
- Heartland Welcome Remarks
- Perspectives from the Health Resources and Services Administration (HRSA)
- National Coordinating Center (NCC) Report (A Keehn)
- Perspectives from the National Center for Hearing Assessment and Management (NCHAM) **presentation slides shared upon request**
- NewSTEPs Updates (S Singh)
- Native Americans and Genomics ELSI Project (P Spicer)
- Pacific Islander Populations in the Midwest Health and Culture (S Riklon)
- Pacific Islander Populations in the Midwest Health and Culture (M Laelan)
- Hispanic Access to Genetics Services Recommendations from the Research (M Coffman)
- Community Health Workers Partners in the Care of Children (A Matiz)
- Improving the Efficiency of Newborn Screening from Collection to Test Results (B Tarini)
- Improving Timeliness in NBS – Lessons Learned from the CoIIN Timeliness Project (Y Kellar-Guenther)
- Long Term Follow Up Longitudinal Pediatric Data Resource (LPDR) (S Rogers)
- Beyond the Diagnosis: Providing Support to Children who are Deaf/Hard of Hearing and their Families
- An Update on Current Practice amd Challenges in Cancer Genetics (A Obregon-Tito)
- Public Health and Cancer Genetics (S Cox)
- Matched Tumor Normal Genetic Testing The Role for Genetic Counselors (T Warner)
- Direct to Consumer Testing (T Lepard Tassin)
Friday, October 14
- Genomics and Genetics in Primary Care (AR Experience) – (B Schaefer)
- Integrating Genomics into Primary Care (J Leonhard)
- Heartland and Western States Telehealth Education Project (L Williamson Dean)
- UAMS Sickle Cell Transition (L Wilson)
- Improving Comprehensive Care and Time Efficiency at the Same Time – The HALI Project Parent Partner Model (B Thompson)
- Healthcare Transition for Patients with Genetic Conditions (W Parent-Johnson)
- STAR School Based Telehealth Centers (A Faulkner)
- Session D Partnerships (L Weatherford)
- Oklahoma Pediatric Research Network (A Chou)
- Cultivating Partnership through Heartland Activities: Collaborative Partners, Care Coordination, Mentoring, LEND, Title V, and GSA
- Evaluation & Reimbursement (A Herrera Morales)
- Closing Remarks
SPONSORS & EXHIBITORS
- Platinum Sponsor: PerkinElmer
- Gold Sponsors: GeneDx, Horizon Pharma, and Shire
- Silver Sponsors: Ambry Genetics and Recordati Rare Diseases
- Bronze Sponsors: Fulgent Diagnostics and PreventionGenetics
- Exhibitors: Baby’s First Test, National Coordinating Center (NCC) for the Regional Genetic Services Collaboratives, and University of Arkansas for Medical Sciences (UAMS) Sickle Cell Program
ABOUT LITTLE ROCK, AR