Collaborators
The Heartland Regional Genetics and Newborn Screening Collaborative works to identify and collaborate with organizations and individuals who have a stake in clinical genetics and newborn screening services. This includes state agencies, health care providers, families, and other organizations. While the majority of our collaborators are clinical genetics service providers and state health program representatives, we collaborate with a broad range of stakeholders, including:
- State Genetic Coordinators
- Advocates: both family members and advocacy organizations
- Medical Geneticists
- Genetic counselors
- Genetic nurses
- Clinical Laboratory
- Newborn Screening Laboratory
- Newborn Screening Coordinators
- Primary care providers
- Specialists
- Industry representatives
- Title V: Children with Special Health Care Needs
- Payer (Insurance) representatives
- Medical Home Leader
- Other Public Health representatives