How We're Organized

The organizational structure of Heartland Regional Genetics and Newborn Screening Collaborative reflects our commitment to including representatives from all states and from all interested groups. Our goal is to ensure participation and consideration of all viewpoints at all levels.

The Heartland Regional Coordinating Center is our administrative home, and provides leadership, decision making, grant and budget management, project management, and facilitates communication.

The Advisory Board makes decisions that require rapid response, approves documents and pilot project awards, advises on key issues and plans, and will provides key leadership in implementation of the Heartland Regional Genetics Plan. The advisory board has a defined membership.

We have four Work Groups, Newborn Screening, Clinical Genetic Services, Advocacy, and Education. These groups plan and participate in regional projects in these areas. Work Groups are open to anyone who is interested.

Outside of Work Groups, projects are implemented through the Pilot Project Program and through sub-contracts. Please see the Projects page for more information on Heartland projects.

The Evaluator works with the Regional Coordinating Center to develop and implement evaluation plans.