Projects
Genetic Systems Assessment Project
The goal of this project is to develop, pilot, and assess the feasibility of a Genetics Systems Assessment instrument (GSA) in the Heartland Region, in consultation with national and international colleagues, by:
- Identifying a set of measurements to be included in the assessment tool;
- Testing the feasibility of reporting on the list of measurements; and
- Assessing the feasibility of adoption and implementation of a genetics systems assessment tool.
Short Project Narrative
Expert Panel Meeting Summary
Steering Committee Meeting Summary
Emergency Preparedness: Heartland Newborn Screening Backup Testing Project
The Heartland Newborn Screening Backup Testing Project is a collaboration between the Iowa and Missouri Newborn Screening (NBS) Laboratories. The goal is to have both states prepared to backup the other state in the event of a calamity, and be prepared to take on the testing of their NBS sample load. The long-term goal of this project is for IA and MO to provide backup for the entire Heartland Region. To date, the Iowa and Missouri NBS Laboratories held two successful one-day emergency drills in February and March, 2008, utilizing the Emergency Management Assistance Compact. In addition, the second annual Heartland Newborn Screening Workshop was held in April, 2008. The 2-day workshop focused on emergency preparedness, and highlighted the results of the Heartland Newborn Screening Backup Testing Project. Future goals of this project were discussed and plans to conduct a 3-day drill this fall are already in place. The workshop was an excellent opportunity for Heartland state NBS programs to collaborate, share best practices and exchange ideas for advancing and improving NBS across the Heartland region.
Pilot Projects
HEARTLAND PILOT PROJECTS PROGRAM
Applications for Year 4 Projects:
The Heartland Pilot Projects Program requested applications from regional public health genomics programs for projects to enhance program infrastructure or performance. A letter of intent was requested by February 8, 2008. The deadline for e-mail submission was Thursday, February 28, 2008 5:00 p.m. (CST). Please see the Heartland Pilot Projects Program Guidelines and Application Forms for more information, or contact the Heartland Regional Coordinating Center. Two projects were approved for funding in this cycle (last two in the 2007-2008 list below)
2007-2008 Pilot Projects
- All 2007-2008 Pilot Projects
- Expanded Newborn Screening: If we offer it, will they come?
- Genetic Testing for Maple Syrup Urine Disease in Mennonite Communities
- Heartland Multi-State Teratogen Education Project
- Using an Electronic Child Profile to Enhance Performance
- Newborn Screening, What Providers and Parents Need to Know
2006-2007 Pilot Projects
Funded by the Heartland Collaborative:
- Assessing Parenting Capacities and Stress in Neurofibromatosis 1
- Online CME: A Practical Course in Expanded Newborn Screening (Cancelled)
- Reduce Disparity of NBS Lab Services in the Heartland Region
- Two-tiered Newborn Screening for SCID utilizing TREC & IL-7 (Cancelled)
Funded by residual Great Plains funds:
2005-2006 Pilot Projects