Projects
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Heartland Pilot Projects Program for 2011-2012
Applications for Year 8 Projects:
The Heartland Pilot Projects Program requests applications from regional public health genomics programs, primary health care providers, professional organizations or consumer and family organizations for projects to enhance program infrastructure or performance. A letter of intent is requested by Wednesday, December 22, 2010. The deadline for e-mail proposal submission is Friday, February 11, 2011 at 5:00 p.m. (CST). Please see the Heartland Pilot Projects Program Guidelines and Application Forms for more information, or contact the Heartland Regional Coordinating Center.
Two projects will be selected for funding in this cycle.
Heartland Telemedicine Manual for Clinical Genetic Services
Heartland Telemedicine Manual for Clinical Genetic Services
Genetic Systems Assessment Project
The goal of this project is to develop, pilot, and assess the feasibility of a Genetics Systems Assessment instrument (GSA) in the Heartland Region, in consultation with national and international colleagues, by:
- Identifying a set of measurements to be included in the assessment tool;
- Testing the feasibility of reporting on the list of measurements; and
- Assessing the feasibility of adoption and implementation of a genetics systems assessment tool.
Short Project Narrative
Expert Panel Meeting Summary (Chicago--May 2008)
Steering Committee Meeting Summary (Phoenix--March 2008)
Expert Panel Meeting Summary (Dallas--May 2009)
Steering Committee and Expert Panel Meeting (Albuquerque--March 2010)
Steering Committee and Expert Panel Meeting (Kansas City, MO--April 2011)
Emergency Preparedness: Heartland Newborn Screening Back-up Testing Project
The Heartland Newborn Screening Backup Testing Project is a collaboration between the Iowa and Missouri Newborn Screening (NBS) Laboratories. The goal is to have both states prepared to backup the other state in the event of a calamity, and be prepared to take on the testing of their NBS sample load. The long-term goal of this project is for IA and MO to provide backup for the entire Heartland Region. To date, the Iowa and Missouri NBS Laboratories held two successful one-day emergency drills in February and March, 2008, utilizing the Emergency Management Assistance Compact. In addition, the second annual Heartland Newborn Screening Workshop was held in April, 2008. The 2-day workshop focused on emergency preparedness, and highlighted the results of the Heartland Newborn Screening Backup Testing Project. Future goals of this project were discussed and plans to conduct a 3-day drill this fall are already in place. The workshop was an excellent opportunity for Heartland state NBS programs to collaborate, share best practices and exchange ideas for advancing and improving NBS across the Heartland region. Progress report on NBS Back-up Testing Project.
Pilot Projects
HEARTLAND PILOT PROJECTS PROGRAM
The Heartland Pilot Projects Program is a mechanism for innovative solutions to address goals and national priorities while simultaneously stimulating synergy and cooperation between states and regions. Results of these projects will inform practices, programs, funding, and policy at the state, regional and federal levels. Proposals must address one of the Heartland goals or the priorities listed in the HRSA guidance (2006). The Heartland Regional Coordinating Center intends to fund at least two pilot projects in each cycle. Funding decisions are based on quality of the project and proposed budget.
Heartland Pilot Project Projects Program Summary
2011-2012 Pilot Projects
- A Novel Approach in Telegenetic Services: Pediatrician and Genetic Counselor Team
- Real Time Family Support Through Social Media
2010-2011 Pilot Projects
- I-Library for Health Consumers & Genealogists
- Does PKU Camp Education Improve Plasma Phenylalanine Levels?
2008-2009 Pilot Projects
- Using an Electronic Child Profile to Enhance Performance
- Newborn Screening, What Providers and Parents Need to Know
2007-2008 Pilot Projects
- All 2007-2008 Pilot Projects
- Expanded Newborn Screening: If we offer it, will they come?
- Genetic Testing for Maple Syrup Urine Disease in Mennonite Communities
- Heartland Multi-State Teratogen Education Project
2006-2007 Pilot Projects
Funded by the Heartland Collaborative:
- Assessing Parenting Capacities and Stress in Neurofibromatosis 1
- Online CME: A Practical Course in Expanded Newborn Screening (Cancelled)
- Reduce Disparity of NBS Lab Services in the Heartland Region
- Two-tiered Newborn Screening for SCID utilizing TREC & IL-7 (Cancelled)
Funded by residual Great Plains funds:
2005-2006 Pilot Projects