How Can I Participate?
The Heartland Genetics and Newborn Screening Collaborative welcomes participation by anyone with an interest in clinical genetics and newborn screening in our region. We promote inclusion of consumers, advocates, and lay partners in a meaningful and substantial way and at all levels of organizational structure. Our goal is to ensure participation and consideration of all viewpoints at all levels.
Get our communications!
Join the Heartland list serve: Our list serve disseminates information from the Regional Coordinating Center on our events, projects, meetings, funding, etc., and allows members to network and communicate with each other. It also disseminates national information related to genetics and newborn screening. Send email to request access.
Subscribe to the Newsletter:
The Heartland Quarterly covers information from our member states and updates on the Heartland Collaborative. Click here to subscribe.
Attend a Meeting:
Please see the Calendar for a list of all our upcoming meetings. Almost all are by teleconference, and are open to any interested parties. We have regular Advisory Board, Clinical Services Work Group, Advocacy Work Group, Newborn Screening Work Group and Education Work Group meetings.
Join a Work Group:
All of our work groups have open membership. For more information on each group, please visit the Work Group pages: Clinical Services, Advocacy, Newborn Screening and Education. Contact us if you are interested in joining.
Attend our Annual Conference:
We meet in person in a different state in our region each year. Our conference is free, and offers an opportunity to learn about and participate in on-going Heartland projects, as well as planning for the future. Updates and education on relevant genetics and newborn screening issues are also included.