Education

mother and child readingQuick Links:

Secure Documents:

Work Group Information

The Education work group is composed of collaborative members who have an interest in professional and public genetics education.

After group discussion at the February 28, 2006 meeting, and review at the June 8, 2006 meeting the following educational priorities were identified (not ranked in order of importance):

  • Educational information availability
    • Multiple languages
    • Centralized location (clearinghouse/web site)
    • Consistent message in materials
    • Materials written by recognized experts
    • Service directory for Heartland Region
  • Educational information for advocacy
    • Public Service Announcements

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Projects

Current projects:

Currently the work group is focusing on collecting information on genetics educational resources in the region. In addition, the lay advocate members are working on collecting information on family-to-family support groups active in our region. In addition, a "Just in Time" wed based educational program on genetic disorders for primary care providers is being developed. This project aims to collaborate with regional American Academy of Pediatrics and American Academy of Family Physicians groups to provide web based information on one or two disorders (as a pilot), with an option of receiving CME (continuing medical education) credits.

Family Health History

This initiative builds on the Kansas City Family History Day pilot project, by promoting Family Health History throughout the region, in conjunction with the Surgeon General's initiative. Efforts to promote, provide education and increase use of Family Health History include development and distribution of public service announcements, video and newspaper press releases, a regional Family Health History web site, modification of a tool kit for the Heartland region (available on the Family Health History web site) , a toll free number for consumers to request written materials, and a campaign to promote Family Health History through regional genealogy groups.

Links and documents discussed:

Materials developed and used by MO to promote FHH (Word documents):

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Minutes

The links below are to PDF files, which require Adobe Reader to view.

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Members

Click on the work group member's address to send an e-mail.
Send email to entire work group.

Facilitator: Sharon Vaz (Oklahoma)

Members:

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Meeting Dates

First Thursday of the month at 1:15pm All files are PDF, and require Adobe Reader to access

  • August 27, 2008: 9-10 AM Teleconference

Agenda

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Last updated: 9/19/08 SRW