September 7, 2018
Join us for this 5-part series on the emotional and social development of children, geared towards child caregivers and professionals. Childcare and meals will be provided at no cost, though there is a $5 admission fee per person. This fee covers all five sessions. The dates are: 9/11/18 9/18/18 9/25/18 10/2/18 10/9/18 Five topics will… Read MoreSeptember 7, 2018
The 2018 Annual Sickle Cell Symposium is fast approaching! On Tuesday, September 18th, we’ll come together with Future Builders Inc, Arkansas Black Nurses Association and the UAMS Adult Sickle Cell Clinical Program to offer an evening of both patient and professional speakers. This event provides 2.5 hours of free CE and free food, and is geared… Read MoreFebruary 27, 2018
Thank you for attending the Inaugural Heartland Training for Early Intervention Providers on January 18, 2018. It’s been a busy month since we last saw you, and I’m finally looping back, specifically, about interest in participating in the project. Participation would include: continuing to learn and build relationships within your state and across the region sharing… Read MoreMay 25, 2017
April 13, 2017
Heartland Telegenetics Training ApplicationApril 6, 2017
Register for our upcoming webinar.September 9, 2016
Download Brochure Lori Williamson Dean, MS, CGC Assistant Professor and Chair Department of Genetic Counseling College of Health Professions and Program Manager Heartland Genetics Services Collaborative University of Arkansas for Medical Sciences Ms. Dean is a 1991 graduate of the Michigan Genetic Counseling Program who currently serves as the Department Chairman and Program Director for… Read MoreJuly 5, 2016
BISMARCK, N.D. – The North Dakota Department of Health (NDDoH) is pleased to announce that July 1 marked an important step in saving the lives of babies born in North Dakota. The state newborn screening program expanded their newborn screening panel to include a disorder called Severe Combined Immune Deficiency (SCID). SCID, also known as… Read MoreApril 20, 2016
Coordinating Care for Children with Genetic Disorders: Sharing Exemplary Practices from Primary Care and Specialty Care Providers report is now available! Please share the report (linked above) with your networks. The report is hosted on the NCC Care Coordination Workgroup Products page (here). On the landing page is the report itself as well as the… Read MoreFebruary 19, 2016
The Heartland Genetics Collaborative and the National Coordinating Center for the Regional Genetic Service Collaboratives (NCC) invites you to comment on proposed models for genetics services to address the current barriers and issues in the genetic service system. In the fall of 2015, two national surveys were conducted that asked providers and consumers to identify… Read MoreFebruary 17, 2016
Dear Heartland colleagues, We are pleased to announce another “rapid round” of small project awards. We will fund 3 awards for up to $5,000 (direct costs) per award. The work must be completed by May 31, 2016. Please see instructions below. Provide a brief description of the project and a budget request. Please submit the… Read MoreFebruary 17, 2016
Twenty states chosen to receive funding that will save babies’ lives Improvements in the timely reporting of newborn screening results can lead to early treatment AURORA, Colo. (Feb. 9, 2016) – The ‘NewSTEPs 360’ program, a collaboration between the Colorado School of Public Health (ColoradoSPH) and the Association of Public Health Laboratories (APHL), has selected 20… Read MoreFebruary 4, 2016
More details coming soon!January 20, 2016
January 12, 2016
This “Talking with Your Doctor” postcard is a product of the Heartland Transition Project led by Dr. Wendy and Richard Parent-Johnson. If you would like some copies, please contact our project coordinator at anayeli@uams.edu.December 10, 2015
November 23, 2015
October 23, 2015
Dear colleagues and partners, The Heartland Genetics Services Collaborative aims to improve policy makers’ understanding about the health insurance needs of people with special health care needs. However, we need families in the Heartland Region to share their voice via a brief survey. The survey will ask questions about health insurance coverage for children with… Read MoreSeptember 18, 2015
The American College of Medical Genetics and Genomics (ACMG), as the National Coordinating Center (NCC) for the seven federally-funded Regional Genetic Service Collaboratives (RCs), is collecting information to inform the Health Resources and Services Administration’s (HRSA’s) development of innovative models of support centers for regional genetic and genomic services and resources that would be useful… Read MoreAugust 12, 2015
Friends and Colleagues across the Heartland, Our hearts are with our colleagues in North Dakota and the state newborn screening program as they mourn and remember our friend and colleague, Dr. Alan Kenien. He was a dedicated physician who touched many people’s lives. Many of you probably met Dr. Kenien and know that he will… Read MoreJuly 2, 2015
The Catalyst Center and National Center for Medical Home Implementation will be hosting a webinar, Navigating the Affordable Care Act (ACA)- Help for families of children with special health care needs, will be held on July 20th at 1:00 PM ET / 12:00 PM CT. Please see below for more information on the webinar (provided… Read MoreJune 10, 2015
“In 2014, newborn screening for 29 conditions resulted in successfully identifying and treating 60 newborns in Nebraska affected with conditions in time to prevent or reduce problems associated with them.” Read the full report.May 15, 2015
You are invited to attend a national dialogue to address access and payment for genetic and genomic healthcare in integrated delivery systems. The meeting will bring together genetics and primary care healthcare providers, consumers, legislators, federal partners, insurers, payers, and public health to discuss genetic/genomic services needed, barriers to accessing those services, and solutions in… Read MoreMay 15, 2015
The presentations for Heartland’s 11th Annual Conference held last month are now available.April 2, 2015
On December 18, 2014 the Newborn Screening Saves Lives Reauthorization Act of 2014 was signed into law. The bill addresses research uses of newborn dried blood spots. Here is the final recommendation from the Secretary’s Advisory Committee on Human Research Protections (SACHRP) on The Newborn Screening Saves Lives Reauthorization Act of 2014, which went into effect… Read MoreMarch 12, 2015
Looking for an educational website on genetics? Check out Genes in Life! It is a place to learn about all the ways genetics is a part of your life. On this site you will learn how genetics affects you and your family, why you should talk to your healthcare providers about genetics, how to get… Read MoreMarch 11, 2015
The presentations for the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children (DACHDNC) February 2015 meeting are now available. Day 1 U.S. Preventive Services Task Force – Overview and the transfer of newborn screening topics to the DACHDNC Iris R. Mabry-Hernandez, MD, MPH Medical Officer U.S. Preventive Services Task Force Program Center for… Read MoreMarch 4, 2015
Friends and Colleagues across the Heartland, Our hearts are with our colleagues in Oklahoma and at the St. Francis Genetics Lab as they mourn and remember our friend and colleague, Fred Schaefer, Ph.D. Please click the link below to see the obituary. https://www.tulsafuneral.com/obituaries/obituary-listings?obId=418227#/obituaryInfo With respect and sympathy, Heartland Coordinating Center StaffFebruary 20, 2015
Although much has been published about the patient-centered medical home, the role of the medical geneticist within this model of care has not been delineated in the literature. After reviewing the literature, debating practice models, and communicating with colleagues in primary care as well as geneticists across the Heartland region, the ad hoc Heartland Medical… Read MoreFebruary 6, 2015
Friends and Colleagues across the Heartland, It deeply saddens me to inform you that our friend and colleague, Dr. Warren Sanger, passed away unexpectedly yesterday. This is a huge loss for so many. Please keep his family and his colleagues at UNMC in your heart. The link below provides information about the services. https://www.unmc.edu/news.cfm?match=16464&pk_campaign=email&pk_kwd=Remembering_Warren_Sanger_PhD You… Read MoreDecember 18, 2014
Dear Colleagues, Partners, and Advocates: It has been a pleasure working with all of you this past year. We wish all of you a wonderful Holiday Season filled with joy, love, and peace! We look forward to continue working with you in the coming year! Warmest regards, The Heartland Team