Bienvenido a Heartland Genetics

Red Regional de Genética de Heartland

Hace 1 día

Are you a parent or caregiver of a child who has visited a pediatric multidisciplinary clinic involving a genetics provider?

A UAMS - Genetic Counseling student is conducting a qualitative study to understand the comfort levels of discussing social determinants of health in clinical settings and the common social factors affecting families like yours. Your insights are invaluable in helping us enhance the holistic care provided to families.

WE NEED PARTICIPANTS WHO ARE
*18 years or older
*Parents or caregivers of a child who has attended at least one pediatric multidisciplinary clinic involving genetics
*Able to communicate in English

To share your experiences, we will schedule a virtual or phone call interview.

As a thank you, you’ll have the chance to enter a drawing to win a children's book of your choice—whether it’s a classic tale, a story related to your child’s diagnosis, or a skill-building book.

Please help us make a difference.

#HRGN #UAMS #genetictesting #newbornscreening #healthservices #geneticscreening #genetics #familyhealth #geneticcounseling #GeneticTesting ... See MoreSee Less

Red Regional de Genética de Heartland

Hace 5 días

Are you a medical geneticist who cares for patients identified through newborn screening?

If so, you’re invited to participate in a UAMS - Genetic Counseling student study that delves into the perspectives of medical geneticists on offering newborn screening (NBS) for early-onset conditions that currently lack treatments.

This research aims to gain insights into how screenings affect patient assessment, diagnosis, management, and the broader impacts on families and public health.

Your expertise and experience are invaluable in shaping future screening practices and enhancing patient care. By participating in a 30-minute Zoom interview, you can contribute to a better understanding of the implications of NBS for untreatable conditions.

Please help us better understand the needs of future healthcare strategies.

#HRGN #uams #geneticscreening #GeneticTesting #geneticcounseling #newbornscreening #genetictesting #newbornscreeningsaveslives ... See MoreSee Less

Red Regional de Genética de Heartland

Hace 2 semanas

Join the HHS Office for Civil Rights for an insightful recent rulemaking briefing on Tuesday, September 10, from 3PM to 4PM ET.

In collaboration with the Health Resources and Services Administration (HRSA), this important event will cover recent final rules that impact health centers and HRSA awardees.

Key topics include:
• The HIPAA Privacy Rule, which enhances privacy protections for reproductive health care.
• Section 504 of the Rehabilitation Act, which aims to eliminate discrimination based on disability and ensure equitable access to medical services and technology.
• Section 1557 of the Affordable Care Act, which strengthens protections against discrimination in health care.

Don't miss this opportunity to make sure you're up to date with these critical regulations by registering today at hrsa-gov.zoomgov.com/webinar/register/WN_qaOUk303QxeGOwkjYOgivw#/regist#HRGNn.#HHSHR#HRSAH#HIPAARSA,#HIPAA ... See MoreSee Less

Red Regional de Genética de Heartland

Hace 2 semanas

Did you know that cancer is the second leading cause of death in children ages 1 to 14.

The American Cancer Society provides childhood cancer resources related to the types of cancer and how they are unique compared to an adult-onset cancer diagnosis.

Childhood cancer may more often have a genetic cause as compared to adults.

Specialty treatment centers throughout the country focus on treating children with cancer. In fact, 85% of children with cancer now live for 5 years or more, thanks to treatment advances, but ongoing research and improvements in medicine remain a need.

Click here to learn more about childhood cancer www.heartlandcollaborative.org/ill_resources/cancer-in-children/

#HRGN #childhoodcancer #childhoodcancerawareness #childhoodcancer #childhoodcancerresearch #genetictesting #genetictesting #GeneticCounseling ... See MoreSee Less

Red Regional de Genética de Heartland

Hace 3 semanas

Attention rural Physicians (MD or DO), Physician Assistants, Nurse Practitioners, and Advanced Practice Registered Nurses in Arkansas, Oklahoma, North Dakota, South Dakota, Iowa, Kansas, Nebraska, and Missouri!

A graduate student with academic faculty support from the UAMS - Genetic Counseling Graduate Program is conducting a study.

We need your help to participate in this important research that aims to measure rural PCP knowledge and attitudes regarding cancer genetic counseling and genetic testing. You can join this anonymous survey if you see at least ten adult patients per week. It takes 15-20 minutes to complete, and upon completion, you can enter a drawing to win one of two $75 Amazon gift cards.

Make a difference and get started now at base.uams.edu/redcap/surveys/?s=D3JYC9LD3RW3T4EN.

#HRGN #geneticist #GeneticCounseling #nurse #nursepractitioner #physicianassistant #registerednurse #physicians ... See MoreSee Less