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Welcome! The Heartland Regional Genetics Network is a group of genetics and newborn screening providers, researchers, industry representatives, public officials, and advocates from Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota.
This website provides information and resources to professionals, families, and collaborators to facilitate communication and work within the Network. Heartland welcomes you to use the resources contained in this site and invites your participation.
Facebook Updates
Did you know that 15% of people have a disability?
In March, we celebrate National Developmental Disabilities Awareness Month, which is all about educating people, fostering relationships, and putting an end to bullying and stereotypes.
Don't forget to wear orange to show your support!
You can learn more at nationaltoday.com/national-developmental-disabilities-awareness-month-2/#:~:text=National%20Devel...
#HRGN #genetics #developmentaldisabilities #DevelopmentalDisabilitiesAwarenessMonth
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Did you know there are other Regional Genetics Networks? This month, we’re highlighting the good work and resources from other regions.
The SERN Southeast Regional Genetics Network shares numerous resources on its website, including a helpful set of emergency preparedness tips for families with members who require extra care.
Head over to southeastgenetics.org/ to see what other resources they have that may help you!
#HRGN #genetictesting #newbornscreening #healthservices #geneticnurse #geneticist #familyhealth #GeneticTesting
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We’ve got you covered!
Don’t worry if you couldn’t make the live video sessions of our Heartland Newborn Screening ECHO Series 2024: Helping Babies Get Off to a Good Start.
You can still watch all three videos on our website at your convenience. This year, we focused on three critical conditions:
Session 1: Congenital Hypothyroidism - The Frequently Misunderstood Screen
Session 2: Cystic Fibrosis - The “Old” but “New” Condition
Session 3: Mucopolysaccharidosis type II (MPS II) - A New and Mighty Disorder
Each session is packed with expert insights on etiology, the importance of early treatment, interactive case discussions, long-term follow-up strategies, and support mechanisms for families.
Visit our website today to watch the videos and help us spread the word about giving our babies the best start possible, www.heartlandcollaborative.org/educational-resources/echo-series/.
#HRGN #genetictesting #newbornscreening #geneticist #developmentaldisabilities #geneticcounseling #geneticcounselor #GeneticTesting #mucopolysaccharidosis #cysticfibrosis #Hypothyroidism
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Our Videos
We offer a collection of genetic testing related videos in Spanish and Marshallese, with and without English subtitles. These videos educate and prepare families by providing resources to help them navigate their unique genetic testing journey. Please subscribe to our YouTube channel to receive notifications when new videos are available.
Facebook Updates
Did you know that 15% of people have a disability?
In March, we celebrate National Developmental Disabilities Awareness Month, which is all about educating people, fostering relationships, and putting an end to bullying and stereotypes.
Don't forget to wear orange to show your support!
You can learn more at nationaltoday.com/national-developmental-disabilities-awareness-month-2/#:~:text=National%20Devel...
#HRGN #genetics #developmentaldisabilities #DevelopmentalDisabilitiesAwarenessMonth
... See MoreSee Less
0 CommentsComment on Facebook
Did you know there are other Regional Genetics Networks? This month, we’re highlighting the good work and resources from other regions.
The SERN Southeast Regional Genetics Network shares numerous resources on its website, including a helpful set of emergency preparedness tips for families with members who require extra care.
Head over to southeastgenetics.org/ to see what other resources they have that may help you!
#HRGN #genetictesting #newbornscreening #healthservices #geneticnurse #geneticist #familyhealth #GeneticTesting
... See MoreSee Less
0 CommentsComment on Facebook
We’ve got you covered!
Don’t worry if you couldn’t make the live video sessions of our Heartland Newborn Screening ECHO Series 2024: Helping Babies Get Off to a Good Start.
You can still watch all three videos on our website at your convenience. This year, we focused on three critical conditions:
Session 1: Congenital Hypothyroidism - The Frequently Misunderstood Screen
Session 2: Cystic Fibrosis - The “Old” but “New” Condition
Session 3: Mucopolysaccharidosis type II (MPS II) - A New and Mighty Disorder
Each session is packed with expert insights on etiology, the importance of early treatment, interactive case discussions, long-term follow-up strategies, and support mechanisms for families.
Visit our website today to watch the videos and help us spread the word about giving our babies the best start possible, www.heartlandcollaborative.org/educational-resources/echo-series/.
#HRGN #genetictesting #newbornscreening #geneticist #developmentaldisabilities #geneticcounseling #geneticcounselor #GeneticTesting #mucopolysaccharidosis #cysticfibrosis #Hypothyroidism
... See MoreSee Less
0 CommentsComment on Facebook