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Welcome! The Heartland Regional Genetics Network is a group of genetics and newborn screening providers, researchers, industry representatives, public officials, and advocates from Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota.
This website provides information and resources to professionals, families, and collaborators to facilitate communication and work within the Network. Heartland welcomes you to use the resources contained in this site and invites your participation.
Facebook Updates
September is Sick Cell Awareness Month.
Did you know that sickle cell disease is a genetic disorder that changes the shape of red blood cells, causing these cells to lose their flexibility and long life? It can cause pain, fatigue, and damage to organ systems.
Thankfully, there is treatment and identification available.
This article discusses many aspects of sickle cell and has extra content explaining how it is passed down to a family member.
You can read this article in English or Spanish at www.heartlandcollaborative.org/ill_resources/what-is-sickle-cell-disease/
#HRGN
#sicklecell
#SickleCellAwareness
#genetics
What is Sickle Cell Disease? - Heartland Collaborative
Basics on sickle cell, etiology, manifestations, treatments, with links for how it is passed down. Embedded are also videos that help explain.On Thursday, September 28th, from 9:00am to 4:30pm, there is a one-day special education law and advocacy program in Tulsa, OK.
The areas of focus include special education law, SMART IEPs, tests and measurements to evaluate progress and regression, and an introduction to tools and strategies for effective advocacy.
This program is designed to meet the needs of parents, educators, healthcare providers, advocates, and attorneys who represent children with disabilities regarding special education.
For more information and to register, visit www.eventbrite.com/e/wrightslaw-special-education-law-and-advocacy-training-tickets-696892061917?...
#HRGN
#genetics
#IEP
Wrightslaw Special Education Law and Advocacy Training
Wrightslaw Special Education Law & Advocacy Conference with Wayne Steedman, Esq. Thursday, September 28, 2023, 8:30 am to 4:30 pmDuring the last week of September, our friends in the Marshall Islands celebrate Manit Week, a beautiful tribute to their rich cultural heritage, traditions, and history.
Wishing everyone participating in this special event a week full of joy, unity, and remembrance.
Here's to celebrating diversity and the unique identities that make us who we are!
#HRGN
#Marshallese
#ManitWeek
#diversity
Our Videos
We offer a collection of genetic testing related videos in Spanish and Marshallese, with and without English subtitles. These videos educate and prepare families by providing resources to help them navigate their unique genetic testing journey. Please subscribe to our YouTube channel to receive notifications when new videos are available.
Facebook Updates
September is Sick Cell Awareness Month.
Did you know that sickle cell disease is a genetic disorder that changes the shape of red blood cells, causing these cells to lose their flexibility and long life? It can cause pain, fatigue, and damage to organ systems.
Thankfully, there is treatment and identification available.
This article discusses many aspects of sickle cell and has extra content explaining how it is passed down to a family member.
You can read this article in English or Spanish at www.heartlandcollaborative.org/ill_resources/what-is-sickle-cell-disease/
#HRGN
#sicklecell
#SickleCellAwareness
#genetics
What is Sickle Cell Disease? - Heartland Collaborative
Basics on sickle cell, etiology, manifestations, treatments, with links for how it is passed down. Embedded are also videos that help explain.On Thursday, September 28th, from 9:00am to 4:30pm, there is a one-day special education law and advocacy program in Tulsa, OK.
The areas of focus include special education law, SMART IEPs, tests and measurements to evaluate progress and regression, and an introduction to tools and strategies for effective advocacy.
This program is designed to meet the needs of parents, educators, healthcare providers, advocates, and attorneys who represent children with disabilities regarding special education.
For more information and to register, visit www.eventbrite.com/e/wrightslaw-special-education-law-and-advocacy-training-tickets-696892061917?...
#HRGN
#genetics
#IEP
Wrightslaw Special Education Law and Advocacy Training
Wrightslaw Special Education Law & Advocacy Conference with Wayne Steedman, Esq. Thursday, September 28, 2023, 8:30 am to 4:30 pmDuring the last week of September, our friends in the Marshall Islands celebrate Manit Week, a beautiful tribute to their rich cultural heritage, traditions, and history.
Wishing everyone participating in this special event a week full of joy, unity, and remembrance.
Here's to celebrating diversity and the unique identities that make us who we are!
#HRGN
#Marshallese
#ManitWeek
#diversity