Family Resources & Services

Our listing contains Family Resources and Services in our region: Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota. It is not intended to be a comprehensive list of all resources or services within the Heartland Region and the Heartland Collaborative is not responsible for information found on third-party websites.

The Heartland Collaborative updates this information at least once a year (last update Summer 2012). If there is a resource that you would like to see be added, please contact the Heartland Regional Coordinating Center by email at hrcc@ouhsc.edu.

Family Network Organizations and Contact Information

Family Voices of North Dakota
PO Box 163 312 2nd Avenue West
Edgeley, ND 58433
Phone:  (701) 493-2634
Fax:  (701) 493-2635
Toll-Free:  (888) 522-9654
Primary Contact(s):
Donene Feist
Moe Schroder

South Dakota Parent Connection
3701 W 49th Street Suite 102
Sioux Falls, SD 57106
Phone:  (605) 361-3171
Fax:  (605) 361-2928
Toll-Free:  (800) 640-4553
Primary Contact(s):
Lisa Sanderson
Carla Miller

PTI Nebraska
1941 S 42nd St, Suite 205
Omaha, NE 68105
Phone:  (402) 403-3908
Fax:  (402) 934-1479
Toll-Free:  (888) 490-9233
Primary Contact(s):
Michael Tufte
Nina Baker

Families Together, Inc.
3033 W Second, Rm 122
Wichita, KS 67203
Phone:  (316) 945-7747
Fax:  (316) 263-0031
Toll-Free:  (888) 815-6364
Primary Contact(s):
Connie Zienkewicz
Tami Allen

Arkansas Disability Coalition
1501 N. University Avenue Suite 221
Little Rock, AR 72207
Phone:  (501) 614-7020
Primary Contact(s):
Wanda Horton

Missouri Family-to-Family Resource Center at UMKC-IHD
215 S. Pershing, 6th Floor
Kansas City, MO 64108
Phone:  (816) 235-1763
Fax:  (888) 503-3107
Toll-Free:  (800) 444-0821
Primary Contact(s):
Sheli Reynolds

Family to Family Iowa at ASK Resource Center
5665 Greendale Road, Suite D
Johnston, IA 50131-1592
Phone:  (515) 243-1713
Fax:  (515) 243-1902
Toll-Free:  (800) 450-8667
Primary Contact(s):
Karen Thompson
Paula Connolly

Other Family Services

Baby’s First Test

For more than 40 years, infants born in the US have been screened for an increasing number of congenital conditions, yet parents are often unaware of the availability and need for newborn screening. This is the foundation for the nation’s first Newborn Screening Clearinghouse (NBSC), which connects millions of parents and healthcare providers with resources and information relevant to more than four million newborns screened annually.

The NBSC  increases awareness of newborn screening and improves the understanding and informed decision-making capacity of expectant and new parents, health professionals, industry representatives, and the public. It connects state and regional public health groups in these efforts and facilitate data and resource sharing and provides a central linkage location for access to informational resources and data on quality indicators of newborn screening.