Fetal Alcohol Spectrum Disorders (FASD)
The Center for Disease Control (CDC) provides information on FASD including how it is caused,…
National Organization for Rare Disorders (NORD)
NORD aims to provide resources to those with rare diseases and 'lift up' the rare…
Expanded carrier screening for reproductive risk assessment: An evidence-based practice guideline from the National Society of Genetic Counselors
Expanded carrier screening (ECS) helps healthy individuals screen for autosomal recessive and x-linked conditions that…
Clinical genetic counseling and translation considerations for polygenic scores in personalized risk assessments: A Practice Resource from the National Society of Genetic Counselors
Polygenic scores (PGS) help estimate one's genetic risk for many conditions through a large amount…
Navigating Barriers in LGBTQ+ Genetic Care
LGBTQ+ genetic counselors, advocates, and educators address overcoming barriers to delivering affirming care for LGBTQ+…
GINA & You: Understanding GINA, The Genetic Information NonDiscrimination Act of 2008
This 2 page document contains quick and easy to understand information about GINA - including…
MotherToBaby
MotherToBaby is both an English and Spanish resource to help all individuals, families, providers, and…
Clinical, technical, and environmental biases influencing equitable access to clinical genetics/genomics testing: A points to consider statement of the American College of Medical Genetics and Genomics (ACMG)
The American College of Medical Genetics and Genomics (ACMG) has listed multiple points to consider…
Screening and Diagnosis of Mental Health Conditions During Pregnancy and Postpartum
The American College of Obstetricians and Gynecologists (ACOG) in this June 2023 provider guideline discuss…
Do My Genes Impact my Risk for Prostate Cancer?
Prostate cancer is one of the leading causes of cancer death among all races and…
Medline Plus Genetics: Consumer-friendly information
Explore specific genetic conditions, genes, chromosomes, or learn more about genetics from the basics of…
How Does Family History Impact My Risk for Diabetes?
Around 1/10 adults and 1/400 children have diabetes. Lifestyle can cause this but someone with…
#218 LEND Program with Betsy Humphreys, Karen Volle & Karina Mancini
LEND (Leadership Education in Neurodevelopmental Disabilities) is monumental in helping cultivate a culturally competent work…
Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs
LEND (Leadership Education in Neurodevelopmental Disabilities) continues to improve the health of infants, children, and…
Is Lung Cancer Genetic?
Lung cancer is primarily caused by smoking, but roughly 8% of the time it is…
#96 Jim Cavan on Backpack Health
Are there tools to help manage my health information? Jim Cavan, CEO and President of…
#124 Infertility Series: Jennifer Eccles on PGT for Polygenic Conditions
What are the different types of preimplantation genetic testing currently available? Jennifer Eccles, Head of…
#123 Infertility: Dr. Kara Goldman on Fertility Testing
What is infertility? At what point should you seek evaluation for it? Dr. Kara Goldman,…
#121 Infertility Series: Baileys on Recipricol IVF Part 2
What is it like to start a family using artificial technologies? Katie and Christina Bailey…
#119 Infertility Series: Lauren Isley on Fertility Genetic Counseling
What does genetics have to do with infertility? What role do genetic counselors play in…
Self-Love with Megan Logan, MSW, LCSW
How can parent caregivers thrive in their role? Megan Logan, MSW, LCSW, mental health counselor…
#116 DNA ALLY on Direct to Consumer Genetic Testing
Can genetic counselors counseling on direct-to-consumer testing? What is the future of direct-to-consumer testing? Nargol…
#108 Dr. Becky Winslow on Pharmacogenomics
Can genetics tell me what medications will work best for me? Dr. Becky Winslow, Doctor…
#103 Brianne Kirpatrick on Adoptee Genetics
I'm adopted. Is genetic testing possible for me? What information can it tell me? Genetic…
#131 DTC Series Libby Copeland on Law Enforcement Use of Genetic Databases
How is genetic information used? What privacy and rights do I have over my genetic…
Navigating Neurological Conditions with Genetic Counselor, Erin Beaver
What does genetics have to do with nerodevelopmental disorders? Erin Beaver, MS, CGC, licensed certified…
In-home therapy during Covid-19 pandemic
How do I navigate in-home therapy and care in the age of COVID? Liz Gallagher,…
Caring for yourself while caring for your child
How do parents of children with complex medical conditions cope? Katherine Aravamudan, a licensed counselor,…
#105 Secret Sequence on Genetic Privacy
How safe is my genetic data? Jason Corbiere, Business Development Executive and Medical Technologist, and…
When A Child Dies: a Guide for family and friends – English
The loss of a child can lead to isolation for the grieving family. This brochure…
When A Child Dies: a Guide for family and friends – Spanish
The loss of a child can lead to isolation for the grieving family. This brochure…
Helping Children Cope with the death of a loved one – Spanish
Telling your child about the loss of a loved one can be difficult. This brochure…
#120 Infertility Series: Baileys on Reciprocal IVF Part 1
What is it like to walk through infertility? Katie and Christina Bailey share their story…
Helping Children Cope with the death of a loved one – English
Telling your child about the loss of a loved one can be difficult. This brochure…
#125 Infertility Series: Nick Charles on Controversies
What medical guidelines provide ethical guidelines for preimplantation genetic testing? What are some of the…
Navigating caregiving resources
This webpage provides information for caregivers about the available resources and support that they can…
#127 DTC Series: Jeanetter McCarthy on the Industry
What is direct-to-consumer testing? Jeanette McCarthy, MPH, PhD, provides a broad overview on DTC genetic…
#99 Coriell Institute on Biobanking
What is biobanking? How does it relate to diagnostics and research? What is the process…
#100 Carl Zimmer on Human Heredity
What do we know about hereditary traits and conditions? How has this understanding changed over…
General Cancer Support
Where can I find support for hereditary cancer or cancer in general? A Fresh Chapter…
Direct-To-Consumer Testing: What you Need to Know
What do I need to know about direct-to-consumer testing? Read about DTC topics and FAQ…
Caregiver 101
Today's Caregiver provides a variety of articles for caregivers. The articles cover many different subjects…
Care for the Caregiver
On this webpage of Today's Caregiver website you can find a variety of articles about…
The Compassionate Friends: Supporting Family After a Child Dies
The Compassionate Friends website provides a variety of resources to families who have lost a…
When Your Child is in Pain – English
If you have questions about how to help your child during times of pain this…
When Your Child is in Pain – Spanish
If you have questions about how to help your child during times of pain this…
Creating Your Advance Directive
An advance directive helps you speak for yourself and let others know what choices you…
Hospice Care
Hospice care is a type of care you or a loved one may receive at…
Palliative Care
On this webpage you can find more information about palliative care. It provides information to…
Coping with Grief
Learn about coping with grief and loss. Here you can find more information about the…
Choosing types of care: Palliative, hospice, and bereavement
There are many different types of care you or a loved one may receive during…
Preparing for being a caregiver
If you are new to being a caregiver to someone in your life, this webpage…
#130 DTC Series: Anne Greb on 23andMe
What is tested for on direct-to-consumer testing? Does DTC test for all genetic disease mutations?…