National Organization for Rare Disorders (NORD)

NORD aims to provide resources to those with rare diseases and 'lift up' the rare…

Navigating Barriers in LGBTQ+ Genetic Care

LGBTQ+ genetic counselors, advocates, and educators address overcoming barriers to delivering affirming care for LGBTQ+…

MotherToBaby

MotherToBaby is both an English and Spanish resource to help all individuals, families, providers, and…

GINA & You: Understanding GINA, The Genetic Information NonDiscrimination Act of 2008

This 2 page document contains quick and easy to understand information about GINA - including…

Medline Plus Genetics: Consumer-friendly information

Explore specific genetic conditions, genes, chromosomes, or learn more about genetics from the basics of…

When A Child Dies: a Guide for family and friends – English

The loss of a child can lead to isolation for the grieving family. This brochure…

When A Child Dies: a Guide for family and friends – Spanish

The loss of a child can lead to isolation for the grieving family. This brochure…

Helping Children Cope with the death of a loved one – Spanish

Telling your child about the loss of a loved one can be difficult. This brochure…

Helping Children Cope with the death of a loved one – English

Telling your child about the loss of a loved one can be difficult. This brochure…

Navigating caregiving resources

This webpage provides information for caregivers about the available resources and support that they can…

Living with Klinefelter Syndrome/47,XXY

The Living with XXY website provides information and resources to people with Klinefelter Syndrome and…

Myriad Gene Risk Table

The Myriad Genetics Gene Table provides information about different genes that are known to be…