National Organization for Rare Disorders (NORD)
NORD aims to provide resources to those with rare diseases and 'lift up' the rare…
Navigating Barriers in LGBTQ+ Genetic Care
LGBTQ+ genetic counselors, advocates, and educators address overcoming barriers to delivering affirming care for LGBTQ+…
MotherToBaby
MotherToBaby is both an English and Spanish resource to help all individuals, families, providers, and…
GINA & You: Understanding GINA, The Genetic Information NonDiscrimination Act of 2008
This 2 page document contains quick and easy to understand information about GINA - including…
Medline Plus Genetics: Consumer-friendly information
Explore specific genetic conditions, genes, chromosomes, or learn more about genetics from the basics of…
When A Child Dies: a Guide for family and friends – English
The loss of a child can lead to isolation for the grieving family. This brochure…
When A Child Dies: a Guide for family and friends – Spanish
The loss of a child can lead to isolation for the grieving family. This brochure…
Helping Children Cope with the death of a loved one – Spanish
Telling your child about the loss of a loved one can be difficult. This brochure…
Helping Children Cope with the death of a loved one – English
Telling your child about the loss of a loved one can be difficult. This brochure…
Navigating caregiving resources
This webpage provides information for caregivers about the available resources and support that they can…
Living with Klinefelter Syndrome/47,XXY
The Living with XXY website provides information and resources to people with Klinefelter Syndrome and…
Myriad Gene Risk Table
The Myriad Genetics Gene Table provides information about different genes that are known to be…