Bienvenido a Heartland Genetics
Bienvenidos! La Red Regional de Genética de Heartland es un grupo de proveedores de genética y cribado neonatal, investigadores, representantes de la industria, funcionarios públicos y defensores de Arkansas, Iowa, Kansas, Missouri, Nebraska, Dakota del Norte, Oklahoma y Dakota del Sur.
Este sitio web proporciona información y recursos a los profesionales, las familias y los colaboradores para facilitar la comunicación y el trabajo dentro de la Red. Heartland le invita a utilizar los recursos contenidos en este sitio y le invita a participar.
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Nuestros vídeos
Ofrecemos una colección de vídeos relacionados con las pruebas genéticas en español y marshalliano, con y sin subtítulos en inglés. Estos videos educan y preparan a las familias proporcionando recursos para ayudarles a navegar por su viaje único de pruebas genéticas. Por favor, suscríbase a nuestro canal de YouTube para recibir notificaciones cuando haya nuevos vídeos disponibles.
May 20–24, 2024 is Public Health Genetics & Genomics Week (PHGW)!
Every year, PHGW spreads awareness about how genetics is involved in public health measures. Follow along during the next week to learn more about the specialists involved, how genetic screening helps the general population, and more!
If you're looking for more information, visit phgw.org/.
#HRGN #PublicHealthGenetics #genetictesting #newbornscreening #geneticist #genetics ... See MoreSee Less
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A Huge Thank You to Brittany Burnside!
We’re excited to extend a heartfelt thank you to Brittany Burnside for her contributions to the Heartland Regional Genetics Network's social media team this year. Brittany's engaging posts and impactful graphics have enhanced our online presence, spread awareness, and educated our communities.
Brittany also recently achieved a monumental milestone by defending her thesis, "Assessing the efficacy of best practices for obtaining culturally relevant and medically accurate pedigrees from Marshallese patients." Her thesis underscores her knowledge and deep commitment to improving patient care and fostering understanding within diverse communities - principles that lie at the heart of genetic counseling.
And there’s more - Brittany is graduating from The University of Arkansas for Medical Sciences (UAMS) College of Health Professions @uamschp with a Master of Science in Genetic Counseling this month!
Please join us in celebrating Brittany's remarkable journey! We are thrilled about her bright future and hope to stay in touch as she embarks on a new chapter of her life.
#HRGN, #uamschp, #GeneticCounselor #geneticcounseling ... See MoreSee Less
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Congrats, Brittany!! Thank you for all your good work!
It’s Asian American and Pacific Islander (AAPI) Heritage Month!
This year, we’re spotlighting the Marshallese, an integral part of the Heartland AAPI community.
We understand the challenges faced by many AAPI populations, especially in accessing genetic services. To better serve our Marshallese community, we have several resources specific to their needs:
*Individual Healthcare Plans (IHPs) in Marshallese
*Genetic Testing Toolkit and Tips for Treating Marshallese Patients for Providers
*Educational Videos in Marshallese
And…we’re excited to announce that we’re working hard to complete five animated genetics videos in Marshallese to assist families through the genetics process.
Join us in honoring the All AAPI communities and learn more about our programs and resources by visiting our website at www.heartlandcollaborative.org/.
#HRGN #genetictesting #newbornscreening #marshallese #genetics #familyhealth ... See MoreSee Less
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Heartland’s Annual Meeting Celebration!
We extend our heartfelt gratitude to everyone who joined us to celebrate the remarkable journey of Heartland Regional Genetics Network (HRGN) over the past two decades.
Key Highlights:
- 20 Years of Achievement: HRGN has left a mark on the genetics landscape, from educating underserved communities to impactful initiatives.
- Your Support Matters: Thank you to our genetics community for your unwavering encouragement, boundless energy, and valuable insights.
- Bright Ideas and Camaraderie: Our annual meetings have been a melting pot of creativity, where ideas spark, connections flourish, and friendships deepen.
As the regional genetics networks gracefully sunset, we know that our Heartland “family” lives on! Our forged bonds will continue to thrive and echo through the years.
#HRGN #genetictesting #newbornscreening #geneticscreening #geneticist #marshallese #genetics #familyhealth #geneticcounseling #genética #geneticcounselor #GeneticTesting ... See MoreSee Less
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LEND (Leadership Education in Neurodevelopmental Disabilities) continues to improve the health of infants, children, and adolescents with disabilities.
Each state has a program consisting of faculty and trainees in a wide range of disciplines. It includes parents/family members as paid program participants.
Learn more about the LEND program, its specific fields, and local contacts in your area through the Association of University Centers on Disabilities Association of University Centers on Disabilities (AUCD) at www.heartlandcollaborative.org/ill_resources/leadership-education-in-neurodevelopmental-and-relat....
#HRGN #disabilityawareness #developmentaldisabilities #genetics #familyhealth ... See MoreSee Less
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Familial Hypercholesterolemia (FH) affects around 1 in 250 people, which makes it one of the most prevalent genetic conditions worldwide, but many do not know about this disease.
FH causes high cholesterol that is not easily removed from the body and deposits into arterial walls. This can increase the risk of heart complications and/or death. Thankfully, genetic testing and treatments are available to those with FH.
The Family Heart Foundation provides easy-to-read and comprehensive information about this condition, including finding a treatment specialist.
Get started at www.heartlandcollaborative.org/ill_resources/familial-hypercholesterolemia/.
#HRGN #genetictesting #HealthServices #geneticscreening #genetics ... See MoreSee Less
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