Welcome to Heartland Genetics
Welcome! The Heartland Regional Genetics Network is a group of genetics and newborn screening providers, researchers, industry representatives, public officials, and advocates from Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota.
This website provides information and resources to professionals, families, and collaborators to facilitate communication and work within the Network. Heartland welcomes you to use the resources contained in this site and invites your participation.
Upcoming Events
Heartland’s Annual Meeting April 23-25
Embassy Suites, Norman, OK
For more information email
cara-vaught@ouhsc.edu
Register here for Heartlands Upcoming Newborn Screening ECHO Series
Follow Us on Facebook
Our Videos
We offer a collection of genetic testing related videos in Spanish and Marshallese, with and without English subtitles. These videos educate and prepare families by providing resources to help them navigate their unique genetic testing journey. Please subscribe to our YouTube channel to receive notifications when new videos are available.
Familial Hypercholesterolemia (FH) affects around 1 in 250 people, which makes it one of the most prevalent genetic conditions worldwide, but many do not know about this disease.
FH causes high cholesterol that is not easily removed from the body and deposits into arterial walls. This can increase the risk of heart complications and/or death. Thankfully, genetic testing and treatments are available to those with FH.
The Family Heart Foundation provides easy-to-read and comprehensive information about this condition, including finding a treatment specialist.
Get started at www.heartlandcollaborative.org/ill_resources/familial-hypercholesterolemia/.
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The National Institutes of Health (NIH) is conducting a research program to improve diversity in health-related research.
This excerpt from their website explains more:
"The All of Us Research Program is inviting one million people across the U.S. to help build one of the most diverse health databases in history. We welcome participants from all backgrounds. Researchers will use the data to learn how our biology, lifestyle, and environment affect health. This may one day help them find ways to treat and prevent disease."
If you're interested, visit allofus.nih.gov/ to learn how to participate.
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We will have a speaker from "All of Us" at our conference next week!!
What Can I Expect from an Appointment at a Genetics Clinic? ( This video is available in Spanish with Spanish or English subtitles.)
Does your child have an upcoming appointment for a genetic evaluation? If so, this video may help you understand what will happen ahead of time.
Head over to our YouTube channel to watch this and other Spanish-language videos to prepare for your visit in advance!
Share and view this video at www.youtube.com/watch?v=9dhwJJ-8hR0.
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Marshallese subtitles coming soon!
A heartfelt Mahalo to each and every person who played a role in the success of our recent Marshallese Interpreter Training in Genetic and Special Health Care Needs, held in the beautiful Kailua Kona, Hawaii.
Your participation, dedication, and collaborative spirit were the key ingredients to the enriching experience we all shared. Together, we’re breaking down barriers and building bridges towards better healthcare.
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UAMS Institute n̄an Community Health Innovation
This month, we’re highlighting resources from other regional genetics networks.
The NYMAC - New York Mid-Atlantic Caribbean Regional Genetics Network shares multiple resources on its website regarding cultural competency and promoting health equity in genetics.
Check out their website at nymacgenetics.org/ to see what else they have to offer!
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April 7th is World Health Day!
Every year, World Health Day celebrates the founding of the World Health Organization (@who), selecting one health topic to focus on for the year. This year's theme is "My Health, My Right."
The WHO says, "This year’s theme was chosen to champion the rights of everyone, everywhere, to have access to health services, education, and information, as well as safe drinking water, clean air, good nutrition, quality housing, decent working and environmental conditions, and freedom from discrimination."
Learn more at www.who.int/news-room/events/detail/2024/04/07/default-calendar/world-health-day-2024-my-health-m....
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