Welcome to Heartland Genetics
Welcome! The Heartland Regional Genetics Network is a group of genetics and newborn screening providers, researchers, industry representatives, public officials, and advocates from Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota.
This website provides information and resources to professionals, families, and collaborators to facilitate communication and work within the Network. Heartland welcomes you to use the resources contained in this site and invites your participation.
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The National Coordinating Center for the Regional Genetics Network has published new genetic glossaries! The newest healthcare interpreter glossaries are available for pediatric genetics, prenatal genetics, and Autism spectrum disorder. The genetic glossaries are available in a variety of languages and can be found at nccrcg.org/healthcare-interpreter-glossaries/
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Check out these opportunities from the New England RGN!Have you tuned into @negenetics series yet? In partnership with the Weitzman Institute, NERGN holds monthly genetics webinars that cover a host of topics ranging from #PKU to Direct to Consumer Testing. Watch archived webinars and sign up for future webinars at: negenetics.org/professionals
6-month results are in! Mini-COMET phase 2 study of safety and efficacy of avalglucosidase alfa in 22 patients with infantile-onset #PompeDisease. Is it worthwhile to switch? bit.ly/3iUeTGO
Our Videos
We offer a collection of genetic testing related videos in Spanish and Marshallese, with and without English subtitles. These videos educate and prepare families by providing resources to help them navigate their unique genetic testing journey. Please subscribe to our YouTube channel to receive notifications when new videos are available.
