Welcome to Heartland Genetics
Welcome! The Heartland Regional Genetics Network is a group of genetics and newborn screening providers, researchers, industry representatives, public officials, and advocates from Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota.
This website provides information and resources to professionals, families, and collaborators to facilitate communication and work within the Network. Heartland welcomes you to use the resources contained in this site and invites your participation.
Upcoming Event
Register here for Heartlands Upcoming Newborn Screening ECHO Series
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Our Videos
We offer a collection of genetic testing related videos in Spanish and Marshallese, with and without English subtitles. These videos educate and prepare families by providing resources to help them navigate their unique genetic testing journey. Please subscribe to our YouTube channel to receive notifications when new videos are available.
Are you a medical provider trying to learn about management guidelines for someone with a genetic disease?
The National Coordinating Center for the Regional Genetics Networks publishes videos and information sheets to help people learn the most important aspects of genetic conditions quickly and easily.
Find informative videos and fact sheets at nccrcg.org/knowledge-nugget-series/.
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Each year on December 3rd, the United Nations (UN) hosts the International Day of Persons with Disabilities to raise awareness and promote equity for those with disabilities.
This year, the theme focuses on reaching the UN's Sustainable Development Goals related to disability.
Visit www.un.org/en/observances/day-of-persons-with-disabilities learn mo#HRGN#H#Geneticset#InternationalDayofPersonswithDisabilitiesit#UnitedNationsti#disabilityawarenesseness ... See MoreSee Less
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NCC, in partnership with ACMG - American College of Medical Genetics and Genomics, is excited to announce that two Newborn Screening ACT Sheets have been updated and two new Newborn Screening Algorithms have been developed.
Find the ACT Sheets and Algorithms below:
Updated Mucopolysaccharidosis Type 1 (MPS 1) ACT Sheet- www.acmg.net/PDFLibrary/MPSI-ACT-Sheet.pdf
New Mucopolysaccharidosis Type 1 (MPS 1) Algorithm- www.acmg.net/PDFLibrary/MPSI-Algorithm.pdf
Updated X-linked Adrenoleukodystrophy (X-ALD) ACT Sheet- www.acmg.net/PDFLibrary/X-ALD-ACT-Sheet.pdf
New X-linked Adrenoleukodystrophy (X-ALD) Algorithm- www.acmg.net/PDFLibrary/X-ALD-Algorithm.pdf
Explore these and all other #NewbornScreening ACMG ACT Sheets and Algorithms at www.acmg.net/act.
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