Welcome to Heartland Genetics
Welcome! The Heartland Regional Genetics Network is a group of genetics and newborn screening providers, researchers, industry representatives, public officials, and advocates from Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota.
This website provides information and resources to professionals, families, and collaborators to facilitate communication and work within the Network. Heartland welcomes you to use the resources contained in this site and invites your participation.
Upcoming Event
We’re excited to announce Marshallese Interpreter Training in Chicago, IL from November 14th to November 16th, 2024. This is an exceptional opportunity to enhance your skills and connect with fellow interpreters. Don’t miss out—secure your spot by registering before the deadline on October 31st at 12:00pm CT.
For questions and inquiries, please contact Lynda Riklon at lariklon@uams.edu.
Seats are limited, so register today!
Our Videos
We offer a collection of genetic testing-related videos in English, Spanish, and Marshallese. These videos educate and prepare families by providing resources to help them navigate their unique genetic testing journey.
Earlier this year, the Mountain States Regional Genetics Network held a webinar, "Time 4 Genetics," that focused on newborn screening.
Dr. Dietrich Matern presented "60 Years of Newborn Screening in a Nutshell," which highlighted the history of newborn screening and outlined what the future of newborn screening could look like.
Watch the recording now at www.mountainstatesgenetics.org/t4g-nbs-webinar-recording/?utm_source=NCC&utm_campaign=63fb16118a-....
#HRGN #newbornscreeningsaveslives #newbornscreening #geneticscreening #birthdefects #genetictestingsaveslives #familyhealth ... See MoreSee Less
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Visit the Heartland Regional Genetics Network Services page to learn what genetics services are, why a child might be referred to a genetics clinic, how to find a genetics provider in your area, and more.
This family-friendly page has information in English, Spanish, and Marshallese. Get started today at www.heartlandcollaborative.org/for-families/genetics-services/.
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A graduate student at the University of Arkansas for Medical Sciences (UAMS - Genetic Counseling) is conducting a study, “Utilization of the 2022 Pedigree Nomenclature Standards,” which will examine current pedigree nomenclature practices, and we need your expertise.
Eligibility Criteria:
*Must be 18 or older
*A current practicing genetic counselor
*Able to read English
This survey will take approximately 15 minutes and aims to better understand the utilization of the 2022 Pedigree Nomenclature Standards. Your insights are invaluable to us, and we invite you to contribute to this important field of study.
Join us in enhancing our understanding and practices by taking the survey today at redcapwap.archildrens.org/redcap/surveys/?s=PMTRRCRADE4E98CR.
Participants will have a chance to win one of two $25 Amazon gift cards!
Your participation could make a significant impact.
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We’re thrilled to announce that our genetics series videos, designed to answer the most common genetic questions from families, are now accessible in English, Spanish, and Marshallese.
We’ve created cards, highlighted in this post, with unique QR codes for each language intended for sharing with communities, advocates, families, and patients to empower them to make informed decisions for the best possible outcomes.
If you have questions or would like to request cards, please reach out to Cara via our contact page.
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Calling all Marshallese Interpreters!
Join us in Chicago, IL, November 15th-16th, 2024, for "Marshallese Interpreter Training in Genetics and Special Health Needs." This is an exceptional opportunity to enhance your skills and connect with fellow interpreters.
Seats are limited, so secure your spot today by registering at healthprofessions.uams.edu/programs/geneticcounseling/marshallese-interpreter-training/.
For questions and inquiries, please contact us through the Heartland Regional Genetics Network website.
The registration deadline is October 31st at 12pm CT.
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Just registered 😊
Kelani Silk
Please watch and share our latest video, “Testimonials from Families with Genetic Conditions," in Spanish with English Subtitles, created by Heartland Regional Genetics Network with the support of the @Health Resources and Services Administration (HRSA).
These moving stories showcase the strength, optimism, and infinite love that parents have for their children as they navigate the healthcare system to conduct tests, diagnose, and find care and support for their children with genetic conditions.
Watch the full video at youtu.be/Aa6zBEIZDX0.
#HRGN #HRSA #genetics #GeneticTesting #geneticcounselor #birthdefects #geneticist #geneticscreening #newbornscreening #genetictesting ... See MoreSee Less
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