Everything that the Regional Genetics Network (RC) does should ultimately improve the lives of those individuals and families impacted by genetic conditions (see Heartland’s mission statement). Consumers and advocates are involved in all of Heartland’s workgroups, projects, and Steering Committee. Additionally, this stakeholder group convenes its own work group to address broad, psychosocial concerns affecting those with genetic conditions that the Heartland RC may be able to impact.
Current advocate representation on the Advisory Board and workgroups includes:
- Advisory Board: Jeanne Egger and Larry Weatherford
- EHDI: Erica Herrera and Graciela Sharif
- Newborn Screening: Michelle Black
- Hispanic Access Advisory Committee
All meetings times are CST.
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