All that the Heartland Regional Genetics Network (HRGN) does should ultimately improve the lives of those individuals and families impacted by genetic conditions (Heartland’s mission).  Consumers and advocates are involved in all of Heartland’s work groups, projects, and Steering Committee. Additionally, this stakeholder group convenes its own work group to address broad, psychosocial concerns affecting those with genetic conditions that the Heartland RGN may be able to impact.

Patient and Family Resources