Mission Statement

The Heartland Regional Genetics Network is focused on ensuring the best possible outcome for individuals with heritable disorders and optimizing the health of the population throughout the life cycle by improving understanding and awareness of genetics, expanding access to healthcare, and translating new findings to improve the quality of care within an eight-state region.


The focus of the current funding cycle (2020 – 2024) is to increase access to genetic services, particularly for medically underserved populations. Click here to view Heartland Aims.


The comprehensive evaluation for the Heartland Regional Genetics Network includes collecting data to monitor Heartland’s implementation and identified program outcomes, as well as the federally mandated HRSA common outcome performance measures.

This program evaluation is a dynamic process that utilizes a multi-method approach, including qualitative and quantitative methodologies that encompass formative and outcome evaluation based on the logic model theory of change.

The program director and evaluation consultant are responsible for the development and implementation of the evaluation plan and the data analysis. The three major components of this project’s evaluation include:

  • Evaluation of the implementation and utilization of services;
  • Outcome-based evaluation using qualitative and quantitative data; and
  • The HRSA common outcome performance measures.

This information is used to verify achievement of project outcomes and objectives and its impact on participants. Built into the evaluation process is an ongoing review of formative and summative data to inform program improvement through reflection and action planning. The continuous improvement process for the Heartland includes providing ongoing information which assists Heartland Regional Coordinating Center staff, the Heartland Advisory Board, and state partners to improve their leadership efforts, state NBS systems, and local projects.