Heartland Genetics and Newborn Screening Collaborative 9th Annual Conference
St Louis, MO October 3-5, 2012
The Heartland Genetics and Newborn Screening Collaborative annual conference was held October 3-5, 2012 at the Marriott Union Station in downtown St Louis, MO. More information about the meeting, including reimbursement information and presenter’s slides are below.
Conference Information
- Agenda: Heartland Conference Agenda St Louis–FINAL
- Evaluation: 2012 Conference Evaluation Summary
- Attendance: 67 total attendees and all 8 Heartland states were represented.
Travel and Reimbursement
The Heartland Regional Coordinating Center will pay limited travel expenses for Advisory Board members, core work group members and advocates. See Travel Funding List for the names of those included. (Advocates should conact Shona Whitehead for assistance.) For those whose travel expenses will be covered, Heartland will pay for travel to the meeting, lodging and some meals. Please see the Travel Reimbursement Information document below for instructions.
- Travel Funding List
- Travel Reimbursement Information
- ACH Travel Reimbursement Policy (Applicable to all Heartland funded travelers.)
- Letter of Support to Attend
Contact Dustin Foster (dmfoster@uams.edu) with questions about reimbursement.
Speaker Slides
Thursday, October 4
- Genetics Services in St Louis – Grange
- Regional Genetics Services Collaboratives – Sara Copeland
- NCC for the Regional Geneetic Collaboartives – Mike Watson
- Transition in Practice – Jeanine Schulze
- Got Transition, A Heartland Experience – Ashley Davis
- Transition Project Policy
- Transition Readiness Assessment
- Transition Action Plan
- Transition Matters – Wendy & Richard Parent-Johnson
- NBS and Hemoglobinopathies – Monica Hulbert
- NewSTEPs – Marci Sontag
- NBSTRN Update – Mike Watson
- HRCC Annual Report – Brad Schaefer
- Heartland Evauation Report – Barb Jackson
- Genetic Systems Assessment Project Update–Ann Chou
(Please contact Dr Chou directly with questions: ann-chou@ouhsc.edu)
Friday, October 5
- Lysosomal Storage Disorders: The Missouri Experience – Kathy Grange
- Lysosomal Storage Disorder Screening Implementation Progress in Missouri to Date – Patrick Hopkins
- Cystic Fibrosis: Hitting the Target – Thomas Ferkol
- Real Time Family Support through Social Media – Anne Crotty
- Genetic Counselor and Pediatrician Team – Shobana Kubendran
Conference Sponsors
- PerkinElmer
Exhibitors:
- CombiMatrix
- NewSTEPs
About St Louis, MO
- Explore St Louis
- St Louis Union Station Marriott
- Metrolink St Louis Map