October 23, 2015
Dear colleagues and partners, The Heartland Genetics Services Collaborative aims to improve policy makers’ understanding about the health insurance needs of people with special health care needs. However, we need families in the Heartland Region to share their voice via a brief survey. The survey will ask questions about health insurance coverage for children with… Read MoreJuly 2, 2015
The Catalyst Center and National Center for Medical Home Implementation will be hosting a webinar, Navigating the Affordable Care Act (ACA)- Help for families of children with special health care needs, will be held on July 20th at 1:00 PM ET / 12:00 PM CT. Please see below for more information on the webinar (provided… Read MoreJuly 1, 2015
Thursday, July 9, 2015, 12:00-1:00 pm EDT / 11:00 am – 12:00 pm CST Link to register: https://attendee.gotowebinar.com/register/3577365901707364098 What would improve the care experience for individuals with genetic conditions? What are the barriers that prevent families from accessing genetic counseling and testing? To fully answer these questions, we need to engage individuals and families to learn… Read MoreMarch 25, 2015
The purpose of the HRSA Regional Genetics Collaboratives’ Advocate Leaders Partnership Program is to broaden consumer advocate leaders’ perspective of medical genetics. Each Regional Collaborative identifies and sponsors Advocate Leaders to attend the American College of Medical Genetics (ACMG) and Genomics Annual Clinical Genetics Meeting, which is currently taking place on March 24-28, 2015 in… Read More