Regarding Your Child with Special Health Care Needs

October 23, 2015

Dear colleagues and partners, The Heartland Genetics Services Collaborative aims to improve policy makers’ understanding about the health insurance needs of people with special health care needs. However, we need families in the Heartland Region to share their voice via a brief survey. The survey will ask questions about health insurance coverage for children with… Read More

Webinar: Improving Services for Individuals with Genetic Conditions

July 1, 2015

Thursday, July 9, 2015, 12:00-1:00 pm EDT / 11:00 am – 12:00 pm CST Link to register: What would improve the care experience for individuals with genetic conditions? What are the barriers that prevent families from accessing genetic counseling and testing? To fully answer these questions, we need to engage individuals and families to learn… Read More

HRSA RCs’ Advocate Leaders Partnership Program

March 25, 2015

The purpose of the HRSA Regional Genetics Collaboratives’ Advocate Leaders Partnership Program is to broaden consumer advocate leaders’ perspective of medical genetics.  Each Regional Collaborative identifies and sponsors Advocate Leaders to attend the American College of Medical Genetics (ACMG) and Genomics Annual Clinical Genetics Meeting, which is currently taking place on March 24-28, 2015 in… Read More