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Welcome! The Heartland Regional Genetics Network is a group of genetics and newborn screening providers, researchers, industry representatives, public officials, and advocates from Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, and South Dakota.
This website provides information and resources to professionals, families, and collaborators to facilitate communication and work within the Network. Heartland welcomes you to use the resources contained in this site and invites your participation.
Facebook Updates
Familial Hypercholesterolemia (FH) affects around 1 in 250 people, which makes it one of the most prevalent genetic conditions worldwide, but many do not know about this disease.
FH causes high cholesterol that is not easily removed from the body and deposits into arterial walls. This can increase the risk of heart complications and/or death. Thankfully, genetic testing and treatments are available to those with FH.
The Family Heart Foundation provides easy-to-read and comprehensive information about this condition, including finding a treatment specialist.
Get started at www.heartlandcollaborative.org/ill_resources/familial-hypercholesterolemia/.
#HRGN #genetictesting #healthservices #geneticscreening #genetics
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The National Institutes of Health (NIH) is conducting a research program to improve diversity in health-related research.
This excerpt from their website explains more:
"The All of Us Research Program is inviting one million people across the U.S. to help build one of the most diverse health databases in history. We welcome participants from all backgrounds. Researchers will use the data to learn how our biology, lifestyle, and environment affect health. This may one day help them find ways to treat and prevent disease."
If you're interested, visit allofus.nih.gov/ to learn how to participate.
#HRGN #genetictesting #genetics #familyhealth
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We will have a speaker from "All of Us" at our conference next week!!
What Can I Expect from an Appointment at a Genetics Clinic? ( This video is available in Spanish with Spanish or English subtitles.)
Does your child have an upcoming appointment for a genetic evaluation? If so, this video may help you understand what will happen ahead of time.
Head over to our YouTube channel to watch this and other Spanish-language videos to prepare for your visit in advance!
Share and view this video at www.youtube.com/watch?v=9dhwJJ-8hR0.
#HRGN #genetictesting #newbornscreening #HealthcareInterpreter #geneticscreening #geneticist #genetica #geneticcounseling #GeneticCounselor #genética #genetictesting
1 CommentComment on Facebook
Marshallese subtitles coming soon!
Our Videos
We offer a collection of genetic testing related videos in Spanish and Marshallese, with and without English subtitles. These videos educate and prepare families by providing resources to help them navigate their unique genetic testing journey. Please subscribe to our YouTube channel to receive notifications when new videos are available.
Facebook Updates
Familial Hypercholesterolemia (FH) affects around 1 in 250 people, which makes it one of the most prevalent genetic conditions worldwide, but many do not know about this disease.
FH causes high cholesterol that is not easily removed from the body and deposits into arterial walls. This can increase the risk of heart complications and/or death. Thankfully, genetic testing and treatments are available to those with FH.
The Family Heart Foundation provides easy-to-read and comprehensive information about this condition, including finding a treatment specialist.
Get started at www.heartlandcollaborative.org/ill_resources/familial-hypercholesterolemia/.
#HRGN #genetictesting #healthservices #geneticscreening #genetics
0 CommentsComment on Facebook
The National Institutes of Health (NIH) is conducting a research program to improve diversity in health-related research.
This excerpt from their website explains more:
"The All of Us Research Program is inviting one million people across the U.S. to help build one of the most diverse health databases in history. We welcome participants from all backgrounds. Researchers will use the data to learn how our biology, lifestyle, and environment affect health. This may one day help them find ways to treat and prevent disease."
If you're interested, visit allofus.nih.gov/ to learn how to participate.
#HRGN #genetictesting #genetics #familyhealth
1 CommentComment on Facebook
We will have a speaker from "All of Us" at our conference next week!!
What Can I Expect from an Appointment at a Genetics Clinic? ( This video is available in Spanish with Spanish or English subtitles.)
Does your child have an upcoming appointment for a genetic evaluation? If so, this video may help you understand what will happen ahead of time.
Head over to our YouTube channel to watch this and other Spanish-language videos to prepare for your visit in advance!
Share and view this video at www.youtube.com/watch?v=9dhwJJ-8hR0.
#HRGN #genetictesting #newbornscreening #HealthcareInterpreter #geneticscreening #geneticist #genetica #geneticcounseling #GeneticCounselor #genética #genetictesting
1 CommentComment on Facebook
Marshallese subtitles coming soon!