“Uses of complementary and alternative medicine (CAM) among individuals with genetic and chromosomal abnormalities.”

November 8, 2016


I’m posting this on behalf of one of my genetic counseling students. Please distribute, as you see fit, to your patient/consumer populations. –Thank you! Lori


Hello, my name is Caroline Koch, and I am a second year genetic counseling student at The University of Arkansas for Medical Sciences. Please forward this post with survey link (see below) to your group members and/or patients. Your help is greatly appreciated !! You are welcome to contact the PI through the email geneticsCAM@gmail.com with any questions or concerns.

Study title: “Uses of complementary and alternative medicine (CAM) among individuals with genetic and chromosomal abnormalities”


You are receiving this message as an invitation to participate in genetic counseling student’s research project.

The primary aim of this study is to learn more about CAM use including type, amount of use, reason behind use, and its effects among individuals with a genetic condition or chromosomal abnormality.

You are eligible to participate if you are:

  • 18 years or older with either a genetic or chromosomal abnormality;
  • or the parent or legal guardian of a minor who has been diagnosed with either a genetic or chromosomal abnormality.
  • You have used or are using CAM

If you decide to participate, the next step is to complete an anonymous, online survey.

  • Your responses to the survey questions will remain confidential.
  • This study is completely voluntary.
  • Thus, you are free to refuse to participate or to withdraw your consent to be in this study at any time.
  • There will be no penalty or unfair treatment should you choose not to be in this study.
  • There are no foreseeable risks associated with the survey, only those associated with feelings that may arise from survey questions.
  • There are most likely no immediate benefits for participating in the survey.

By clicking the link below, you are affirming that you are of at least 18 years of age.

The survey is available at:


The University of Arkansas for Medical Sciences Institutional Review Board, which ensures that research involving people follows federal regulations, has approved the research and this consent form. Please contact irb@uams.edu or (501)686-5667 for questions concerning how the research is conducted. IRB number 205778


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