11TH ANNUAL CONFERENCE
The Heartland Genetics Services Collaborative Eleventh Annual Conference and ancillary meetings were held on April 29 – May 1, 2015 at the Kansas City Airport Marriott Hotel in Kansas City, MO. Please see below for the materials provided at the meetings.
CONFERENCE INFORMATION
- Heartland 11th Annual Conference Program Book
- Evaluation results coming soon!
- Attendance: 104 attendees representing all eight Heartland states.
REIMBURSEMENT
- Please submit the Heartland Reimbursement Form along with the original, itemized receipts to Dustin Foster at the address listed on the form. Please note Heartland will cover travel expenses, lodging, meals en route and not provided at the meeting for those that were on the approved list of attendees or received prior approval by e-mail. If you have any questions regarding your approval status, please contact Anayeli Herrera Morales.
PRESENTATIONS
Thursday, April 30
- Heartland Welcome Remarks (B Schaefer)
- Perspectives from HRSA (J Scott)
- National Coordinating Center Report (D Flannery)
- State of the Heartland Region (K Wierenga)
- Perspectives from EHDI (K White)
- NewSTEPs Update (C Yusuf)
- National Genetics Education and Consumer Network (NGECN) (S Romelczyk)
- Williams Syndrome Projects (B Kozel)
- Review of Best Practices in Documenting NBS Refusals (J Penn)
- Heartland Hispanic Access Project (M Coffman)
- Genetic Systems Assessment (A Chou)
- Role of the Geneticist (B Schaefer)
- Role of the Geneticist (C Bruha)
- Heartland Telemedicine Update (B Schaefer)
Friday, May 1
- Etiquette Based Medicine (J Kaylor)
- Words of Respect: Speaking of Disability (V Renault)
- NBS in the Genomics Era Implications for State Programs (A Goldenberg)
- Fruits of our Labors (B Jackson)
- Beginnings and Endings (B Jackson & A Herrera Morales)
SPONSORS & EXHIBITORS
- Gold Sponsor: PerkinElmer
- Silver Sponsors: Hyperion Therapeutics & Recordati Rare Diseases
- Exhibitors: National Coordinating Center (NCC) & National Genetics Education and Consumer Network (NGECN)