National Organization for Rare Disorders (NORD)
NORD aims to provide resources to those with rare diseases and 'lift up' the rare…
Spanish Language Genetic Counseling: Research and Resources
Language concordance has shown to help build rapport, trust, and understanding of information within a…
GINA & You: Understanding GINA, The Genetic Information NonDiscrimination Act of 2008
This 2 page document contains quick and easy to understand information about GINA - including…
Genetic Discrimination and GINA: Will Genetic Testing Affect My Insurance?
This 4 minute video explains the Genetic Information Non Discrimination Act (GINA), including its history,…
Clinical, technical, and environmental biases influencing equitable access to clinical genetics/genomics testing: A points to consider statement of the American College of Medical Genetics and Genomics (ACMG)
The American College of Medical Genetics and Genomics (ACMG) has listed multiple points to consider…
Self-Love with Megan Logan, MSW, LCSW
How can parent caregivers thrive in their role? Megan Logan, MSW, LCSW, mental health counselor…
#103 Brianne Kirpatrick on Adoptee Genetics
I'm adopted. Is genetic testing possible for me? What information can it tell me? Genetic…
#131 DTC Series Libby Copeland on Law Enforcement Use of Genetic Databases
How is genetic information used? What privacy and rights do I have over my genetic…
In-home therapy during Covid-19 pandemic
How do I navigate in-home therapy and care in the age of COVID? Liz Gallagher,…
Caring for yourself while caring for your child
How do parents of children with complex medical conditions cope? Katherine Aravamudan, a licensed counselor,…
When A Child Dies: a Guide for family and friends – English
The loss of a child can lead to isolation for the grieving family. This brochure…
When A Child Dies: a Guide for family and friends – Spanish
The loss of a child can lead to isolation for the grieving family. This brochure…
Helping Children Cope with the death of a loved one – Spanish
Telling your child about the loss of a loved one can be difficult. This brochure…
Helping Children Cope with the death of a loved one – English
Telling your child about the loss of a loved one can be difficult. This brochure…
Concurrent Care for Children
The National Hospice and Palliative Care Organization website gives information on the Concurrent Care for…
Navigating caregiving resources
This webpage provides information for caregivers about the available resources and support that they can…
How do I tell my children about my cancer gene mutation?
This brochure provides tips and guidance with parents about how to share their positive cancer…
General Cancer Support
Where can I find support for hereditary cancer or cancer in general? A Fresh Chapter…
The Genes Between Us: Your Guide to Sharing Genetic Test Results with Relatives
Where can I find resources and support for hereditary cancer? FORCE helps previvors and survivors…
Genetics, Disease Prevention and Treatment FAQ
Why is family history important to my medical care? What can family medical history tell…
How to Communicate with Your Family Members About Your Genetic Test Results
How do I tell my family about my genetic test results? Genetic Counselor, Mary-Frances Garber,…
Part 1: Components of the Healthcare System
What do I need to know to navigate the healthcare system? Watch this 2 min…
Part 3: Types of Health Insurance
What are the different types of health insurance? How do I know what I have…
Part 2:Types of Patient Care and the Healthcare Team
Who is part of the healthcare team? What are the different models of patient care…
Part 5: Your Role as a Patient
What is my role as a patient in the healthcare system? Watch this 5 min…
Part 4: Understanding Medical Bills
How can I make sense of this medical bill? Watch this 3 min video and…
Caregiver 101
Today's Caregiver provides a variety of articles for caregivers. The articles cover many different subjects…
The Compassionate Friends: Supporting Family After a Child Dies
The Compassionate Friends website provides a variety of resources to families who have lost a…
Care for the Caregiver
On this webpage of Today's Caregiver website you can find a variety of articles about…
When Your Child is in Pain – English
If you have questions about how to help your child during times of pain this…
Today’s Caregiver magazine and https://caregiver.com interviews Michael Jordan, Founder and CEO of CircleOf Inc.
In this 14-minute podcast you can hear from Michael Jordan, founder of CircleOf Inc. about…
Today’s Caregiver magazine and caregiver.com interviews Susan Peppers, Vice President of Express Scripts Pharmacy
In this 12-minute podcast you can hear from Susan Peppers about pharmacists and why it…
When Your Child is in Pain – Spanish
If you have questions about how to help your child during times of pain this…
Talking with Your Child About His or Her Illness
In this brochure you can find information about how to talk with your child about…
Talking with Your Child’s Doctor – English
Doctors visits can be complex with the many questions they may ask and the amount…
Talking with Your Child’s Doctor – Spanish
Doctors visits can be complex with the many questions they may ask and the amount…
Creating Your Advance Directive
An advance directive helps you speak for yourself and let others know what choices you…
Financial Matters
There are many different considerations one has to make while being a caregiver and one…
Hospice Care
Hospice care is a type of care you or a loved one may receive at…
Palliative Care
On this webpage you can find more information about palliative care. It provides information to…
Coping with Grief
Learn about coping with grief and loss. Here you can find more information about the…
Choosing types of care: Palliative, hospice, and bereavement
There are many different types of care you or a loved one may receive during…
Preparing for being a caregiver
If you are new to being a caregiver to someone in your life, this webpage…