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National Organization for Rare Disorders (NORD)

By ryandahlhauser ‐ September 21, 2023

NORD aims to provide resources to those with rare diseases and ‘lift up’ the rare disease community by helping people to better understand these diseases, live with the conditions, find support, advance research, and drive policy. Patient assistance programs and an organizational database to find groups and resources specific to many genetic conditions are just two of the many features of NORD. Organizations like these can be vital to assisting patients to have increased social support and direction in managing a condition.


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